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Living with IIH

 
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Pseudotumor Cerebri (PTC) Benign Intracranial Hypertension (BIH) Idiopathic Intracranial Hypertension (IIH) Secondary Intracranial Hypertension (SIH).

You'll all have one and the same condition. It is known mainly as the latter one as there is no known cause, hence the idiopathic. Confusing we know! If you've just been diagnosed you can get together here with others to talk over how you feel about it, and ask the long-term sufferers lots of questions and advice on how to deal with it.

  Men and IIH
Introductions and Updates
  Women and IIH
Introductions and Updates

Teens and IIH
Talk about the problems you face with school college uni etc.
  Motherhood/Pregnancy & IIH Share your experience of parenting with IIH
  Group Huddle
Got a question? Need to vent or talk about something that's bothering you? Then this is the place for you to do it.
  Members Journal/Blog
Get things off your chest with your own journal or post your blog
 
Alternative Therapy
Talk about other methods you've tried to help you


4923346Update. Some goo...
Tue May 21, 2013 9:30 pm
npalmarozza View latest post
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IIH Successes

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We want you to tell us about successes you have had since being diagnosed with IIH. They could be anything from going back to work, to telling us if the coping methods and guide sheets we have, have worked for you, and if since treatment things have improved. We want to show that having IIH isn't all doom and gloom, and that your successes will give hope to those newly diagnosed and to those who are struggling. Every success you have will help someone else to achieve the same success based on your experience. So please post.


1799Sophia doing wel...
Thu Apr 18, 2013 10:50 pm
Heidi View latest post
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Poll Zone

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Answer or create a poll of your own about things relevant to life with IIH


1083Do you ever get ...
Sat Apr 27, 2013 4:08 pm
Heidi View latest post
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Meetup and Connect

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Ask any of our Admin or Moderators to help you arrange to meet up with members in your surrounding Areas. Make sure you also state which country you are in.

 


936Meet up or conne...
Fri Apr 19, 2013 6:51 pm
dreambiglisa View latest post
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DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
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