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Women and IIH

Share your IIH story with other members and let them get to know you and your experiences of this condition.
2811983newly diagnosed ...
Tue Aug 08, 2017 9:14 pm
medmisfit View latest post
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 Men and IIH

Introduce yourself and share your experience with other males who have IIH.

19241Alternative Trea...
Sat Aug 05, 2017 7:30 am
Sophiasmom View latest post
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Teens and IIH 16-19



210im almost 20 and...
Sat Sep 13, 2014 11:24 am
BananasMom View latest post
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Pregnancy and Motherhood

510Pregnancy with a...
Fri Sep 15, 2017 7:33 pm
medmisfit View latest post
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Alternative Therapy

This forum is about alternative therapies that you have used and found help or to talk about any that you have seen but haven't tried and to ask other members if they have found them helpful
1799Cranial Sacral T...
Wed Aug 24, 2016 5:49 pm
medmisfit View latest post
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IIH Helpful Coping Methods

IIH Helpful Coping Methods

Suggestions and advice on various subjects to do with IIH

Feel free to suggest methods that have helped you to cope with daily life with IIH, from housework to education. We all have found ways to adapt to everyday life, share these with other members.


2779Binaural beats f...
Wed Jun 15, 2016 3:40 am
Crg553 View latest post
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Group Huddle

Having a bad day? Need a shoulder? Do you just have a specific question to ask?
This forum will allow you to share your feelings and questions with sympathetic members, who understand and can share an experience.

3242300Alcohol Intolera...
Sat Sep 16, 2017 5:05 pm
Sophiasmom View latest post
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IIH Successes

IIH Successes

We want you to tell us about successes you have had since being diagnosed with IIH. They could be anything from going back to work, to telling us if the coping methods and guide sheets we have, have worked for you, and if since treatment things have improved. We want to show that having IIH isn't all doom and gloom, and that your successes will give hope to those newly diagnosed and to those who are struggling. Every success you have will help someone else to achieve the same success based on your experience. So please post.


22161Ashley's Story...
Sun Sep 24, 2017 9:28 pm
swilborn View latest post
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Useful Guides and Printouts

Useful Guides and Printouts

Here you can find handy guides that we hope you will find useful in having a better life with your IIH, they are methods that we have used that have helped us to have as normal a life as possible.

Our Information and Education booklets are


Information booklets from Partner Organisations
The Brain and Spine Foundation
Rare Disease UK

3030IIH Information ...
Wed Jul 09, 2014 9:22 pm
Heidi View latest post
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Benefit Resources



1011Benefits and Wor...
Thu May 16, 2013 8:48 pm
Heidi View latest post
 Announcement & Sticky  Replies  Author  Views  Last Posts 
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Global announcement:

BUY A WRISTBAND OR LAPEL PIN


Merchandise Annoincement
 
0Heidi3029on Tue Feb 18, 2014 10:18 pm
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Programmable shunts being affected by the magnets in tablet computers.
 
1sinister4163795on Thu Nov 14, 2013 5:36 pm
Wylee View latest post
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Admin Announcement
 
18Heidi4719on Thu Sep 19, 2013 11:55 pm
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IMPORTANT SURVEYS
 
0Heidi4461on Fri Nov 02, 2012 8:42 pm
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Partner Organisation
 
0Heidi2887on Mon Mar 19, 2012 10:57 pm
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Urgent Advice
 
1Heidi2633on Tue Apr 05, 2011 10:29 pm
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No new posts 0Heidi1352on Wed Feb 25, 2009 5:16 pm
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 Topics  Replies  Author  Views  Last Posts 
No new posts 3JessG26185on Mon Sep 11, 2017 6:03 pm
medmisfit View latest post
No new posts 2JuliaSuzanne197on Mon Jul 31, 2017 5:12 pm
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No new posts 1Sammy-ann265on Tue May 02, 2017 2:28 pm
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No new posts 13Spookess417on Mon Feb 13, 2017 4:38 pm
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No new posts 26Kaitlinms739on Thu Dec 01, 2016 5:19 am
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No new posts 1Kaitlinms320on Mon Nov 14, 2016 6:42 am
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High Pressure Headaches and Menstruation
 
17missjean222859on Wed Sep 21, 2016 3:55 am
Nami81 View latest post
No new posts 3RosieB819on Sat Sep 19, 2015 5:41 am
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No new posts 4emma;)2107on Fri Jan 31, 2014 11:53 pm
emma;) View latest post
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Looking for pain management options
 
2medmisfit1444on Tue Jun 28, 2011 8:12 pm
medmisfit View latest post
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[sub]IIH Signs and Symptoms[/sub]
 
0Heidi1636on Wed May 25, 2011 6:20 pm
Heidi View latest post
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Have any of you had issues w/ digestion?
 
2medmisfit1853on Thu May 19, 2011 2:58 pm
medmisfit View latest post
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Looking for treatment options
 
2medmisfit1497on Fri Apr 22, 2011 6:19 pm
medmisfit View latest post
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member discussion
 
3missjean221396on Sun Apr 10, 2011 12:23 am
Heidi View latest post
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Group Question
 
5missjean226524on Wed Apr 06, 2011 12:38 pm
seasprite View latest post
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Group discussion
 
3painoh1734on Mon Apr 04, 2011 3:32 am
ChrisC View latest post
No new posts 7Guest1706on Tue Mar 22, 2011 10:19 pm
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Shunt migraines
 
9missy83191948on Thu Nov 04, 2010 11:31 pm
Heidi View latest post
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Surgery Procedure
 
3missjean221482on Mon Jun 28, 2010 11:01 pm
Heidi View latest post
No new posts 10traceyb1993on Sat Jun 19, 2010 12:50 pm
geri View latest post
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IIH
 
5linsey1878on Sat Jun 05, 2010 11:36 am
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No new posts 6traceyb2065on Wed May 12, 2010 6:28 pm
Heidi View latest post
No new posts 8IdaSerafiina4164on Tue May 11, 2010 7:22 pm
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No new posts 6traceyb1623on Sat May 08, 2010 2:35 pm
Heidi View latest post
No new posts 7traceyb3265on Wed Apr 28, 2010 6:48 pm
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No new posts 6Guest1608on Fri Apr 16, 2010 9:35 pm
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Updates
 
4Heidi1509on Wed Mar 31, 2010 4:07 pm
Christy Savage View latest post
No new posts 2missjean221685on Tue Mar 23, 2010 4:11 pm
Heidi View latest post
No new posts 8Guest2572on Tue Mar 16, 2010 5:50 am
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No new posts 5Lacy1613on Sat Mar 14, 2009 4:10 pm
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DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
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