http://iihkindredspirits.forumshealth.com/feed/? Latest topics Sun, 14 Mar 2010 17:19:43 GMT 10 http://hitskin.com/themes/12/97/68/i_logo.png http://iihkindredspirits.forumshealth.com/feed/? http://iihkindredspirits.forumshealth.com/ongoing-longterm-iih-f3/sweating-t91.htm sf15999 Today, I left work early since I felt uncomfortable due to excessive sweating of my face and chest. The office has its A/C working just fine but I wonder why I had been sweating profusely this week. I hope this is not one of the reactions I have with my ongoing treatment for IIH. Have anyone here experienced such as well. Like early morning feeling of fatigue, sweating, stress, and sleepiness ? I had a good night sleep last night also that is why I was bothered by these sensations for almost ... Ongoing/longterm IIH Sun, 14 Mar 2010 17:19:43 GMT http://iihkindredspirits.forumshealth.com/ongoing-longterm-iih-f3/sweating-t91.htm#254 http://iihkindredspirits.forumshealth.com/ongoing-longterm-iih-f3/sweating-t91.htm http://iihkindredspirits.forumshealth.com/introductions-f19/saleh-s-introduction-t81.htm sf15999 I am a thirty seven year old professional working in the Middle East. I have been in perfect health until I experienced an episode of blackouts for about 10 minutes, and double vision for about 45 minutes and then a temporary loss of my vision in one of my travels to Europe. Added to these, I have been peppered with series of headaches, stabbing pain at the back of eyes, and I noticed that I get stressed and fatigued easily. Out the concerns, when went back home I visited the ophthalmologist ... Introductions Sat, 13 Mar 2010 18:56:40 GMT http://iihkindredspirits.forumshealth.com/introductions-f19/saleh-s-introduction-t81.htm#234 http://iihkindredspirits.forumshealth.com/introductions-f19/saleh-s-introduction-t81.htm http://iihkindredspirits.forumshealth.com/surgery-f8/reveal-implant-to-monitor-heart-t67.htm Heidi ]]> Surgery Thu, 25 Feb 2010 16:40:17 GMT http://iihkindredspirits.forumshealth.com/surgery-f8/reveal-implant-to-monitor-heart-t67.htm#206 http://iihkindredspirits.forumshealth.com/surgery-f8/reveal-implant-to-monitor-heart-t67.htm http://iihkindredspirits.forumshealth.com/iih-helpful-coping-methods-f33/noise-t80.htm Charlie
My husband bought me a pair of ear plugs. They are the ones they use for shooting because you can hear the everyday sounds but they block out the volume!!]]> IIH Helpful Coping Methods Sat, 13 Mar 2010 13:25:16 GMT http://iihkindredspirits.forumshealth.com/iih-helpful-coping-methods-f33/noise-t80.htm#231 http://iihkindredspirits.forumshealth.com/iih-helpful-coping-methods-f33/noise-t80.htm http://iihkindredspirits.forumshealth.com/introductions-f21/hi-i-m-jay-t65.htm Jay My wife has had IIH since 1989, but when we met she had been in remission for about 4 years. Unfortunately 2 years after we married her remission ended, and she had to have an immediate shunt, as her eyesight had reduced significantly, and she was weeks from going completely blind. After having her LP shunt fitted, we went through a very difficult time, as the LP shunt affected her mobility so badly, she wasn't able to walk far, or do any of the things she did before, and she had lost her ... Introductions Tue, 16 Feb 2010 18:45:58 GMT http://iihkindredspirits.forumshealth.com/introductions-f21/hi-i-m-jay-t65.htm#200 http://iihkindredspirits.forumshealth.com/introductions-f21/hi-i-m-jay-t65.htm http://iihkindredspirits.forumshealth.com/jokes-f11/three-men-arrive-at-the-pearly-gates-t75.htm missjean22 I got this in an email so I thought id share it Three men arrive at the Pearly Gates at about the same time, & St Peter asks them to explain what happened. 1st Guy: Well, there I was, minding my own business, walking down the street, when a wardrobe fell on me. 2nd Guy: Well, there I was, minding my own business, coming home, when I caught my wife in bed - I hunted high & low for her lover but couldn't find him anywhere, and in a fit of anger I threw my wardrobe out of the ... Jokes Fri, 12 Mar 2010 17:04:26 GMT http://iihkindredspirits.forumshealth.com/jokes-f11/three-men-arrive-at-the-pearly-gates-t75.htm#218 http://iihkindredspirits.forumshealth.com/jokes-f11/three-men-arrive-at-the-pearly-gates-t75.htm http://iihkindredspirits.forumshealth.com/introductions-f19/this-is-my-story-t74.htm missjean22 Hi this is my story In January 2010 I went to see my GP as i was getting really bad headaches, the GP sent me to the optician, where I went the week after. At the opticians the opticians was really concerned as my sight was very poor He had a look in my eyes and ran out of the room and fetched another optician in to see my eyes, I was concerned as they did not tell me what they were looking at, Then they went out of the room and got another higher optician to have a look, I was getting really ... Introductions Fri, 12 Mar 2010 16:54:46 GMT http://iihkindredspirits.forumshealth.com/introductions-f19/this-is-my-story-t74.htm#217 http://iihkindredspirits.forumshealth.com/introductions-f19/this-is-my-story-t74.htm http://iihkindredspirits.forumshealth.com/games-f15/kindred-spirits-picnic-t31.htm Charlie
I would take A (A lot of chocolate! :twisted: )


A = Apples! (Toffee apples!)]]> Games Thu, 16 Apr 2009 12:50:20 GMT http://iihkindredspirits.forumshealth.com/games-f15/kindred-spirits-picnic-t31.htm#61 http://iihkindredspirits.forumshealth.com/games-f15/kindred-spirits-picnic-t31.htm http://iihkindredspirits.forumshealth.com/games-f15/word-association-t24.htm Charlie . So to start;

Friend;]]> Games Sat, 28 Mar 2009 21:08:45 GMT http://iihkindredspirits.forumshealth.com/games-f15/word-association-t24.htm#37 http://iihkindredspirits.forumshealth.com/games-f15/word-association-t24.htm http://iihkindredspirits.forumshealth.com/games-f15/whats-in-the-garden-shed-t32.htm Charlie
Whats in your garden shed? Again A, B, C and so on;

A = Anglegrinder? (according to my husband!!) :P Sorry I cheated!]]> Games Thu, 16 Apr 2009 12:55:33 GMT http://iihkindredspirits.forumshealth.com/games-f15/whats-in-the-garden-shed-t32.htm#62 http://iihkindredspirits.forumshealth.com/games-f15/whats-in-the-garden-shed-t32.htm http://iihkindredspirits.forumshealth.com/games-f15/five-word-story-t25.htm Charlie

One sunny day a young.....................]]> Games Sat, 28 Mar 2009 21:19:12 GMT http://iihkindredspirits.forumshealth.com/games-f15/five-word-story-t25.htm#38 http://iihkindredspirits.forumshealth.com/games-f15/five-word-story-t25.htm http://iihkindredspirits.forumshealth.com/depression-f35/subsymptoms-of-depression-sub-t73.htm Heidi There are various types of depression such as major depression and bi-polar/manic depression, which many of us are familiar with and heard about. When you don't exhibit the symptoms of particular forms of depression it is classed as unspecified depression. If you have feelings of depression everyday and it's not as severe as major depression and is a moderate to low depression, this will be diagnosed as Dysthymic depression. There are many causes for depression, it can run in families, ... Depression Fri, 12 Mar 2010 16:00:09 GMT http://iihkindredspirits.forumshealth.com/depression-f35/subsymptoms-of-depression-sub-t73.htm#215 http://iihkindredspirits.forumshealth.com/depression-f35/subsymptoms-of-depression-sub-t73.htm http://iihkindredspirits.forumshealth.com/anxiety-and-panic-attacks-f34/what-are-panic-attacks-t71.htm Heidi Panics attacks are often caused by stress and/or anxiety. During a panic attack your breath speeds up causing your heart rate to go faster, because you breathe in oxygen faster. They can last seconds to a few minutes. This can lead to you feeling some or all the following; Dizziness and nausea Hot and flushes Faintness Trembling Hyperventilation Diarrhoea Heart palpitations and a tight sensation in the chest Confusion Feelings of impending disaster or death Suggested ... Anxiety and Panic Attacks Sat, 06 Mar 2010 19:01:19 GMT http://iihkindredspirits.forumshealth.com/anxiety-and-panic-attacks-f34/what-are-panic-attacks-t71.htm#214 http://iihkindredspirits.forumshealth.com/anxiety-and-panic-attacks-f34/what-are-panic-attacks-t71.htm http://iihkindredspirits.forumshealth.com/anxiety-and-panic-attacks-f34/what-is-stress-t69.htm Heidi Everyone reacts differently when it comes to stress, and it's caused when you feel pressured. Small amounts of pressure can sometimes motivate you to do more, but when too much pressure is placed on you, it can lead to anxiety and panic attacks. Your body releases three chemicals when it becomes stressed, these are adrenalin, cortisol and noradrenaline. These chemicals are the ones that make you want to fight back, and help you to deal with difficult situations. If for some reason you aren't ... Anxiety and Panic Attacks Sat, 06 Mar 2010 18:21:31 GMT http://iihkindredspirits.forumshealth.com/anxiety-and-panic-attacks-f34/what-is-stress-t69.htm#212 http://iihkindredspirits.forumshealth.com/anxiety-and-panic-attacks-f34/what-is-stress-t69.htm http://iihkindredspirits.forumshealth.com/suggestions-f28/should-each-group-have-their-own-chatroom-t68.htm Heidi Would members like each group to have a chatroom of their own, rather than a community chatroom? Suggestions Sun, 28 Feb 2010 23:39:24 GMT http://iihkindredspirits.forumshealth.com/suggestions-f28/should-each-group-have-their-own-chatroom-t68.htm#209 http://iihkindredspirits.forumshealth.com/suggestions-f28/should-each-group-have-their-own-chatroom-t68.htm http://iihkindredspirits.forumshealth.com/chiari-f2/my-11-year-old-son-is-having-an-mri-t66.htm Charlie Lets hope it is clear... oh his eyes are ok... no paplodema.]]> Chiari Wed, 24 Feb 2010 17:58:00 GMT http://iihkindredspirits.forumshealth.com/chiari-f2/my-11-year-old-son-is-having-an-mri-t66.htm#204 http://iihkindredspirits.forumshealth.com/chiari-f2/my-11-year-old-son-is-having-an-mri-t66.htm http://iihkindredspirits.forumshealth.com/how-to-s-on-the-board-f29/how-to-join-a-usergroup-and-how-to-become-a-usergroup-moderator-t64.htm Heidi To join a usergroup click on groups and select the group you wish to join. Not all groups are open access -- some are closed and some may even have hidden memberships. If the board is open then you can request to join it by clicking the appropriate button. The user group moderator will need to approve your request; they may ask why you want to join the group. Usergroups are initially created by the board administrator who also assigns a board moderator. If you are interested in ... How to's on the board Tue, 16 Feb 2010 17:44:25 GMT http://iihkindredspirits.forumshealth.com/how-to-s-on-the-board-f29/how-to-join-a-usergroup-and-how-to-become-a-usergroup-moderator-t64.htm#199 http://iihkindredspirits.forumshealth.com/how-to-s-on-the-board-f29/how-to-join-a-usergroup-and-how-to-become-a-usergroup-moderator-t64.htm http://iihkindredspirits.forumshealth.com/introductions-f19/here-is-my-story-t22.htm Charlie “My Story” Well here goes I have started this so many times! One I finished and deleted by mistake when I was happy with it ARRGH. Better luck this time!! It all started about 2 years ago when I went to see my GP about my head aches. Coincidently I also had back ache so she referred me for physio. It solved the back ache but not the head ache. Now, I’m not one for moaning so I ignored it. I’d take regular pain killers and make sure I drank plenty! I actually thought I had a ... Introductions Thu, 19 Mar 2009 17:41:51 GMT http://iihkindredspirits.forumshealth.com/introductions-f19/here-is-my-story-t22.htm#32 http://iihkindredspirits.forumshealth.com/introductions-f19/here-is-my-story-t22.htm http://iihkindredspirits.forumshealth.com/jokes-f11/ten-dog-rules-t35.htm Heidi 1.The dog is not allowed in the house. 2. Okay, the dog is allowed in the house, but only in certain rooms. 3. Ok, fine, the dog is allowed in all rooms, but has to stay off the furniture. 4. The dog can get on the old furniture only. 5. Fine, the dog is allowed on all the furniture, but is not allowed to sleep with the humans on the bed. 6. Okay, the dog is allowed on the bed, but only by invitation. 7. The dog can sleep on the bed whenever he wants, but not under the ... Jokes Thu, 16 Apr 2009 21:10:08 GMT http://iihkindredspirits.forumshealth.com/jokes-f11/ten-dog-rules-t35.htm#84 http://iihkindredspirits.forumshealth.com/jokes-f11/ten-dog-rules-t35.htm http://iihkindredspirits.forumshealth.com/book-club-f17/another-book-t54.htm Charlie I've been reading these books by 'Stephenie Meyer' The first on is called 'Twilight' then 'New Moon', 'Eclipse' and 'Breaking Dawn' They are about a group of teenage vampires. I admit its not smething I would usually read but a friend convinced me to read them..... I'm hooked!!! They are very popular so you may already have heard of them. The second film is out at the cinema on November 20th. Book Club Fri, 23 Oct 2009 09:21:02 GMT http://iihkindredspirits.forumshealth.com/book-club-f17/another-book-t54.htm#181 http://iihkindredspirits.forumshealth.com/book-club-f17/another-book-t54.htm http://iihkindredspirits.forumshealth.com/surgery-f8/titch-stent-surgery-t36.htm Titch Hello Everyone, Well not sure if I should put this here but it follows on so thought it would be ok I rang the Hospital this morning because its been just under three weeks since I sent the letter to the neurosurgeon to ask to be put on the list for a Stent. I spoke to his secatary who brought my screen up & said she had the letter from my clinic appointment three weeks ago, & theres a paragrath at the bottom saying that a stent op has been offerd to me as a option that Prof ... Surgery Mon, 20 Apr 2009 16:40:05 GMT http://iihkindredspirits.forumshealth.com/surgery-f8/titch-stent-surgery-t36.htm#96 http://iihkindredspirits.forumshealth.com/surgery-f8/titch-stent-surgery-t36.htm http://iihkindredspirits.forumshealth.com/medication-f6/switching-brands-of-acetazolamide-t57.htm Babby
On a side note, Hello Heidi!! I've missed you!]]> Medication Wed, 10 Feb 2010 17:26:50 GMT http://iihkindredspirits.forumshealth.com/medication-f6/switching-brands-of-acetazolamide-t57.htm#185 http://iihkindredspirits.forumshealth.com/medication-f6/switching-brands-of-acetazolamide-t57.htm http://iihkindredspirits.forumshealth.com/chiari-f2/my-anniversary-t56.htm Charlie
I am now feeling the benefits... they did say 6 months to 2 years before I notice significant improvements!!

Soooooo glad they did it!!! :cheers: :cheers: :cheers:]]> Chiari Sun, 17 Jan 2010 23:03:26 GMT http://iihkindredspirits.forumshealth.com/chiari-f2/my-anniversary-t56.htm#184 http://iihkindredspirits.forumshealth.com/chiari-f2/my-anniversary-t56.htm http://iihkindredspirits.forumshealth.com/i-m-listening-f9/slow-recovery-t55.htm Heidi Well it seems to be ongoing my recovery,I'm still having physio and the Doctor at the Fracture Clinic told me that it will take at least another 6-9 months, before my ankle is fully healed, and that I'm going to need my crutches for a while yet . I was hoping to have ditched them by christmas, so it's a good job I'm not going dancing. I must admit the pain is still there though, and they say that could last for a while maybe indefinitely. My arm is working it's way back to normal with the ... I'm listening Fri, 30 Oct 2009 21:57:37 GMT http://iihkindredspirits.forumshealth.com/i-m-listening-f9/slow-recovery-t55.htm#182 http://iihkindredspirits.forumshealth.com/i-m-listening-f9/slow-recovery-t55.htm http://iihkindredspirits.forumshealth.com/this-and-that-f10/sorry-for-the-long-absence-t53.htm Heidi Well it's been quite a long 4 months, but I think I'm now on my way to some sort of recovery. Somewhere a long the line I think I spoke to soon about having a good run of health since my last surgery. However, I didn't expect my WPW(irregular heartbeat) to start playing up like it did when I was younger which is how I came to collapse and break my ankle in 2 places, which then needed a plate and pins to fix it, and a disclocated elbow, which ended up in a full arm cast for 3 months. Of course ... This and That Mon, 05 Oct 2009 12:36:04 GMT http://iihkindredspirits.forumshealth.com/this-and-that-f10/sorry-for-the-long-absence-t53.htm#178 http://iihkindredspirits.forumshealth.com/this-and-that-f10/sorry-for-the-long-absence-t53.htm http://iihkindredspirits.forumshealth.com/introductions-f20/diagnosed-in-2004-when-i-was-20-t47.htm Alynn384 Hi everyone! I was diagnosed back in 2004. I had been dealing with "migraines" since I was 15. My doctors were quick to prescribe me different migraine meds. Finally, back in 2004 I went for a routine eye exam and there it was. My optic nerve was raised and I was told to go see a neurologist. Since then it has been a series of LPs every few months. My body doesn't respond to medications. I am now seeing a neurosurgeon about have a shunt put in my head. Im absolutely terrified ... Introductions Tue, 30 Jun 2009 20:05:09 GMT http://iihkindredspirits.forumshealth.com/introductions-f20/diagnosed-in-2004-when-i-was-20-t47.htm#163 http://iihkindredspirits.forumshealth.com/introductions-f20/diagnosed-in-2004-when-i-was-20-t47.htm http://iihkindredspirits.forumshealth.com/i-m-listening-f9/headache-t52.htm Charlie ]]> I'm listening Tue, 22 Sep 2009 19:00:30 GMT http://iihkindredspirits.forumshealth.com/i-m-listening-f9/headache-t52.htm#177 http://iihkindredspirits.forumshealth.com/i-m-listening-f9/headache-t52.htm http://iihkindredspirits.forumshealth.com/i-m-listening-f9/sad-time--t51.htm Charlie I've had to say goodbyr to my old dog Harvey. He was 15 and he had heart failure so we had to make the awfull decision to have the vet put him to sleep. So so so sad. Heartbroken. I'm listening Sun, 06 Sep 2009 11:51:02 GMT http://iihkindredspirits.forumshealth.com/i-m-listening-f9/sad-time--t51.htm#176 http://iihkindredspirits.forumshealth.com/i-m-listening-f9/sad-time--t51.htm http://iihkindredspirits.forumshealth.com/i-m-listening-f9/heidi-is-not-well-hugs-t46.htm Charlie I'm in touch with Heidi and she has not been too well. She had to call the doctor our the other day. She has virtigo and is on strict bed rest. I'll keep updating here with any news from her. But keep her in your thoughts. Hope she is back soon. GET WELL SOON HEIDI!!! XXX I'm listening Sun, 14 Jun 2009 16:34:45 GMT http://iihkindredspirits.forumshealth.com/i-m-listening-f9/heidi-is-not-well-hugs-t46.htm#156 http://iihkindredspirits.forumshealth.com/i-m-listening-f9/heidi-is-not-well-hugs-t46.htm http://iihkindredspirits.forumshealth.com/website-fun-f30/farmville-on-facebook-t50.htm Charlie
I'm adicted, I always wanted my own farm. :cat: :pig: :monkey: :albino: :cherry: ]]> Website Fun Mon, 17 Aug 2009 21:34:55 GMT http://iihkindredspirits.forumshealth.com/website-fun-f30/farmville-on-facebook-t50.htm#174 http://iihkindredspirits.forumshealth.com/website-fun-f30/farmville-on-facebook-t50.htm http://iihkindredspirits.forumshealth.com/i-m-listening-f9/memory-problems-t49.htm Charlie This memory thing is driving me to dispair. Honesly sometimes it is just ..... :twisted: :twisted: :twisted: and more :twisted: . Most the time I keep it to myself, well when I can, if it doesnt affect others like forgetting my childrens dental appiontments or my own appointments or if I forget what I'm saying mid sentence. Or I try to laugh it off, but it is just that when I say something like "Oh no I forgot again, my memory is so bad" I sometimes find myself getting ... I'm listening Tue, 28 Jul 2009 14:51:56 GMT http://iihkindredspirits.forumshealth.com/i-m-listening-f9/memory-problems-t49.htm#172 http://iihkindredspirits.forumshealth.com/i-m-listening-f9/memory-problems-t49.htm http://iihkindredspirits.forumshealth.com/eyes-f7/eyes-hurting-again-t27.htm uffdamom After I got the blood patch and got over the spinal headache, I really felt a lot better for a while. Didn't have any headaches, eye pain or nausea. The last couple of days I really have felt rotten. When my eyes hurt I am so nauseous. I wish I had some direction from one of the doctors on what is normal and what is something I need to call them about or come in to the clinic for. Eyes Tue, 07 Apr 2009 02:48:51 GMT http://iihkindredspirits.forumshealth.com/eyes-f7/eyes-hurting-again-t27.htm#43 http://iihkindredspirits.forumshealth.com/eyes-f7/eyes-hurting-again-t27.htm http://iihkindredspirits.forumshealth.com/this-and-that-f10/omg-i-ve-had-swine-flu-t48.htm Charlie Oh my Gosh!!! I've had a rotten week! It started with the sore throat then the rest of the symptoms started then my Mum insisted I called my doctor. She told me I had swine :pig: flu!! Any way I've had the Tamyflu pills. I'm beggining to feel much better now and getting back to everyday stuff again (just as well with the children on school holidays!) Pretty scary though with everything in the news at the moment. :affraid: BUt be warned if anyone here gets it get the pain relief ready. ... This and That Sun, 19 Jul 2009 17:10:37 GMT http://iihkindredspirits.forumshealth.com/this-and-that-f10/omg-i-ve-had-swine-flu-t48.htm#168 http://iihkindredspirits.forumshealth.com/this-and-that-f10/omg-i-ve-had-swine-flu-t48.htm http://iihkindredspirits.forumshealth.com/this-and-that-f10/i-ve-been-away-i-m-back-now-xxx-t45.htm Charlie I've not been online for a while so I thought I'd let you know where I've been; We have had the best holiday EVER! To cut a long story short, we went down to my friends cottage in Cornwall with our children. Now this may sound so sad but its the first holiday we have had alone - I mean myself, my husband and our 3 children............. no other family!!!! WE REALLY NEEDED IT!!! I cant put into words how great it was!!! When I have a min I'll try to get some pics downloaded!!! ... This and That Mon, 08 Jun 2009 10:44:18 GMT http://iihkindredspirits.forumshealth.com/this-and-that-f10/i-ve-been-away-i-m-back-now-xxx-t45.htm#155 http://iihkindredspirits.forumshealth.com/this-and-that-f10/i-ve-been-away-i-m-back-now-xxx-t45.htm http://iihkindredspirits.forumshealth.com/this-and-that-f10/wheelchair-referral-t38.htm Titch Hello Everyone, Well as you know three weeks ago I asked my GP for a wheelchair referral. As its been three weeks now I thought I would have a look on the net. So I looked up my hospital & found the clinic that deals with this. So I phoned them & asked if they have recieved a referral for me & they haden't. This has made me cross because its now been three weeks wasted stuck in the house. The receptionist sugested I should get back to my GP. So I called the surgery. ... This and That Tue, 21 Apr 2009 16:49:11 GMT http://iihkindredspirits.forumshealth.com/this-and-that-f10/wheelchair-referral-t38.htm#102 http://iihkindredspirits.forumshealth.com/this-and-that-f10/wheelchair-referral-t38.htm http://iihkindredspirits.forumshealth.com/barometric-headaches-f14/bloomin-weather-t28.htm Heidi I'm just keeping my fingers crossed the weather changes and soon!]]> Barometric Headaches Thu, 09 Apr 2009 18:37:33 GMT http://iihkindredspirits.forumshealth.com/barometric-headaches-f14/bloomin-weather-t28.htm#48 http://iihkindredspirits.forumshealth.com/barometric-headaches-f14/bloomin-weather-t28.htm http://iihkindredspirits.forumshealth.com/eyes-f7/i-had-an-opthalmologist-appointment-yesterday-t44.htm Charlie I saw an opthalmologist yesterday it was a good chance for me to ask a whole heap of questions about my eyes. I mainly wanted to know if the damage to my eyes is permanent. Well as I guessed unfortunately it is, I'm stuck with my 'puffa fish' in my left eye and the double vision in my perifial vision. I do however still feel gratefull that I can see at all. At one point when I was diagnosed I was fast going blind. They want to see me again in two months. And they want some of those ... Eyes Thu, 14 May 2009 15:18:27 GMT http://iihkindredspirits.forumshealth.com/eyes-f7/i-had-an-opthalmologist-appointment-yesterday-t44.htm#136 http://iihkindredspirits.forumshealth.com/eyes-f7/i-had-an-opthalmologist-appointment-yesterday-t44.htm http://iihkindredspirits.forumshealth.com/games-f15/any-suggestions-for-games-please-let-us-know-here-t15.htm Charlie :geek: :bball: If you have seen, played or have any ideas for games we could play here please let us know here. We are always looking for new ideas! I'll get some fun little games here soon! Games Wed, 11 Mar 2009 17:37:39 GMT http://iihkindredspirits.forumshealth.com/games-f15/any-suggestions-for-games-please-let-us-know-here-t15.htm#17 http://iihkindredspirits.forumshealth.com/games-f15/any-suggestions-for-games-please-let-us-know-here-t15.htm http://iihkindredspirits.forumshealth.com/i-m-listening-f9/i-m-back-t42.htm Charlie Oh my word............ What a nightmare!! Life without my laptop (I dropped it and it smashed... I mean really smashed!!) I'm amazed how much I depend on it now. Appart from this place I do all my grocery shopping on line now and keep intouch with friends via facebook and emails. Also my husband and I have a garden landscape business and we now have a website. Although we have a normal PC it has been running slowly and we have to fight over it, the business gets proirity on there! Thats ... I'm listening Thu, 07 May 2009 11:52:11 GMT http://iihkindredspirits.forumshealth.com/i-m-listening-f9/i-m-back-t42.htm#126 http://iihkindredspirits.forumshealth.com/i-m-listening-f9/i-m-back-t42.htm http://iihkindredspirits.forumshealth.com/this-and-that-f10/happy-birthday-hollie-t43.htm Titch HAPPY BIRTHDAY HOLLIE

LOVE FROM TITCH

I hope you have a good day ]]> This and That Tue, 12 May 2009 19:33:27 GMT http://iihkindredspirits.forumshealth.com/this-and-that-f10/happy-birthday-hollie-t43.htm#130 http://iihkindredspirits.forumshealth.com/this-and-that-f10/happy-birthday-hollie-t43.htm http://iihkindredspirits.forumshealth.com/eyes-f7/photophobia-t41.htm Titch Hello Everyone, The other day when the sun was shining I went out to Tesco's round in one of their wheelchairs. When we came out of the shop the sun was really bright, a lovely day, but I couldn't see a thing My eyes were just too sensative to the light, it was really hurting my eyes. So I had to stare at the floor . So I looked it up & it seems that our eyes when they have pap can't focus the muscles in & out to dilate our pupils acordingly. I was just wondering if ... Eyes Tue, 05 May 2009 08:33:06 GMT http://iihkindredspirits.forumshealth.com/eyes-f7/photophobia-t41.htm#122 http://iihkindredspirits.forumshealth.com/eyes-f7/photophobia-t41.htm http://iihkindredspirits.forumshealth.com/this-and-that-f10/neurosurgeon-appt-t40.htm Heidi ,I think he's going to be pleased with my progress since I last saw him, and he will probably refer me back to my neurologist. It's not till June so fingers crossed nothing goes wrong before it ]]> This and That Tue, 28 Apr 2009 14:56:39 GMT http://iihkindredspirits.forumshealth.com/this-and-that-f10/neurosurgeon-appt-t40.htm#117 http://iihkindredspirits.forumshealth.com/this-and-that-f10/neurosurgeon-appt-t40.htm http://iihkindredspirits.forumshealth.com/this-and-that-f10/radio-talk-on-iih-t39.htm Titch Hello Everyone, Last night there was a talk about IIH on a radio show. The web adress is www.blogradio.com/thepositiveside. The talk was with a lady who has IIH herself & Dr Emanuel Tanne co founder & chairamn of IHRF. The talk started at 10pm & went on for two hours. I only got as far as 11pm bfore I couldn't keep my eyes open anymore But If you look at that site they have the talk archived so you can listen to it. I will at some point listen to the rest. As far ... This and That Thu, 23 Apr 2009 08:21:45 GMT http://iihkindredspirits.forumshealth.com/this-and-that-f10/radio-talk-on-iih-t39.htm#105 http://iihkindredspirits.forumshealth.com/this-and-that-f10/radio-talk-on-iih-t39.htm http://iihkindredspirits.forumshealth.com/i-m-listening-f9/sympathies-for-charlie-t37.htm Heidi Sending big hugs to Charlie who is having major butter finger issues :affraid: Charlie I really hope that you don't have any more mishaps Sweetie I'm listening Mon, 20 Apr 2009 20:16:40 GMT http://iihkindredspirits.forumshealth.com/i-m-listening-f9/sympathies-for-charlie-t37.htm#100 http://iihkindredspirits.forumshealth.com/i-m-listening-f9/sympathies-for-charlie-t37.htm http://iihkindredspirits.forumshealth.com/introductions-f19/hi-my-names-titch-t30.htm Titch Hello everyone, I was diagnosed two years ago this may. I have been down the root of having lumber punctures every 6-8 weeks to see if I was one of the lucky ones where the IIH goes. But it didn't so I have had the Venogram, & angiogram with the lumber puncture to see whats actually causing the raised cfs fluid. They found I have what they called a floopy vein . When my csf is high this vein is narrowed. But when the csf fluid is taken away to a normal level this vein comes back ... Introductions Thu, 16 Apr 2009 08:06:03 GMT http://iihkindredspirits.forumshealth.com/introductions-f19/hi-my-names-titch-t30.htm#53 http://iihkindredspirits.forumshealth.com/introductions-f19/hi-my-names-titch-t30.htm http://iihkindredspirits.forumshealth.com/this-and-that-f10/what-a-day-t34.htm Heidi As well as looking out for any new stuff to add to the forums, I've totally redesigned the main website, and added some new guide sheets which took some doing. I hope it will be helpful and be of use to members. My head feels bashed in with all the codes and jargon , but I've been kept going by the caffeine, always a winner and my hubby constantly saying "it looks great" well he would wouldn't he on pain of death :P I've also been taking a peek at our own new social network, ... This and That Thu, 16 Apr 2009 19:52:02 GMT http://iihkindredspirits.forumshealth.com/this-and-that-f10/what-a-day-t34.htm#81 http://iihkindredspirits.forumshealth.com/this-and-that-f10/what-a-day-t34.htm http://iihkindredspirits.forumshealth.com/this-and-that-f10/made-it-to-tesco-s-t33.htm Titch Hello Everyone, Well I haven't said yet but my IIH has made me house bound. I have in total 7 illnesses IIH being one of them. So today my parents rang me up & asked did I want to have a look around the big tesco Extra thats near by. So although I was feeling rough as usuall I decided to give it a try. My parents push me around in a wheelchair. Thats only the second time ive been out in a wheelchair & its not as scarey as it sounds. I was worried that people would stare at ... This and That Thu, 16 Apr 2009 16:55:31 GMT http://iihkindredspirits.forumshealth.com/this-and-that-f10/made-it-to-tesco-s-t33.htm#75 http://iihkindredspirits.forumshealth.com/this-and-that-f10/made-it-to-tesco-s-t33.htm http://iihkindredspirits.forumshealth.com/introductions-f19/diagnosed-on-jan-16th-2009-t13.htm Lacy Hey everyone my name is Lacy im 28, married mother of two beautiful girls . I was Dignosed with IH in Jan of this year after being admited into the hospital for a headach of unknown orgin. It was when they did my first spinal tap that the discoverd something was wrong. My opening presure was at 40. The neurologist that works only in the hospital said she thought that I had IH, how ever she called it by the old name of Pseudotumor Cerebri. She sent me for an MRI to rule out any blood clots and ... Introductions Sat, 07 Mar 2009 03:50:37 GMT http://iihkindredspirits.forumshealth.com/introductions-f19/diagnosed-on-jan-16th-2009-t13.htm#13 http://iihkindredspirits.forumshealth.com/introductions-f19/diagnosed-on-jan-16th-2009-t13.htm http://iihkindredspirits.forumshealth.com/introductions-f19/diagnosed-a-week-ago-t23.htm uffdamom Hi - My name is Janna. My story is pretty short, but could be longer because I've had headaches upon arising for many years. I've tried several different pillows and thought I had arthritis in my neck. I also get migraines pretty often that make me nauseated. I've heard a scritch-scratching noise in my head since this fall. I began to have pain in my left eye right after New Year's. It felt like a toothache - could feel my entire eyeball. Finally after a few days I went to an optometrist ... Introductions Fri, 20 Mar 2009 23:59:36 GMT http://iihkindredspirits.forumshealth.com/introductions-f19/diagnosed-a-week-ago-t23.htm#34 http://iihkindredspirits.forumshealth.com/introductions-f19/diagnosed-a-week-ago-t23.htm http://iihkindredspirits.forumshealth.com/website-fun-f30/pure-genius-t29.htm Heidi This has got to be one of the cleverest and funniest advertising gimmicks I've ever seen on both tv and the internet. I just love it http://www.comparethemeerkat.com/home.html Website Fun Fri, 10 Apr 2009 21:17:10 GMT http://iihkindredspirits.forumshealth.com/website-fun-f30/pure-genius-t29.htm#52 http://iihkindredspirits.forumshealth.com/website-fun-f30/pure-genius-t29.htm