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sammyjo
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PostSubject: Good day    Sun Nov 11, 2012 6:31 pm

hi guys so i usually use this site to vent about my IIH but i have had 3 good days, my doctor has given me some amazing pain killers, sleeping pills and a temporay hearing aid to lessen/ stop the ooshy ears. its no the perfect solution but i cant have nother LP so untill my surgey tis is the best they can do and i can honestly say i have slept the past 2 nights and i have felt HUMAN x so thought it would be nice to share a smile Very Happy:D
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Aliviamom11
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PostSubject: Re: Good day    Sun Nov 11, 2012 8:03 pm

Hi Samyjo,
I to am feeling human again. I had a lp Last night and the dr took off 31cc. I feel like a person. I can function and enjoy life even if it temporary. My opening pressure was in the 50s. I can actually play with my daughter. :lol:


marlana
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sammyjo
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PostSubject: Re: Good day    Mon Nov 12, 2012 12:09 pm

[You must be registered and logged in to see this image.][You must be registered and logged in to see this image.]so happy for ux x x
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Heidi
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PostSubject: Re: Good day    Mon Nov 12, 2012 7:56 pm

It's always fantastic to see members are having good days. Thank you for sharing them and please keep on sharing your good days. You give everyone a boost and a smile.

Heidi xx
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medmisfit
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PostSubject: Re: Good day    Tue Nov 13, 2012 7:08 pm

I'm so glad you're both getting some relief..it is nice to hear!!!
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sammyjo
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PostSubject: Re: Good day    Thu Nov 15, 2012 11:38 am

sorry guys but seems it was all to good to be true IIH is back in swing and at the minute kicking my ASS x sorry to burst ur bubble or put a downer on you high
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Heidi
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PostSubject: Re: Good day    Thu Nov 15, 2012 4:10 pm

Sammy we understand the good and bad days, but it's always good to hear when someone is having good days, no matter how long or short that time lasts. We have to remember to make the best of the good ones that come, and by sharing them it gives a moral boost. hug
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PostSubject: Re: Good day    Thu Nov 15, 2012 7:22 pm

Definitely..a pain free day is HUGE! Celebrate the small things and hold onto the possibilites during difficult times..knowing it's possible just gives me hope!!!
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sammyjo
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PostSubject: Re: Good day    Thu Nov 15, 2012 8:21 pm

[You must be registered and logged in to see this image.] guys ur right the good days give me hope that soon they will all be good days x
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Aliviamom11
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PostSubject: Re: Good day    Thu Nov 15, 2012 10:23 pm

My bad days are back. New meds and surgery consult on 12/12/12. Seems i need an icp bolt and lp shunt. censored


marlana
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sammyjo
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PostSubject: Re: Good day    Fri Nov 16, 2012 9:39 am

marlana my surgial consult is 11/12/12 for LPshunt... i am so sorry that they r changing ur med thats always the worst bit coz for a few days ur body has no medication in the systom and u feel back at square one.. chin up huni all i keep thinking is after the surgry it will all be better maybe it will for you to

"lifes not about waiting for the storm to pass, but learning to dance in the rain"
i hope u feel better soon x
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Aliviamom11
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PostSubject: Re: Good day    Sat Nov 17, 2012 1:38 am

Im hoping and have my fingers crossed for the both of us...the meds just make me tired..i was diagnosed at 24 on 12/15/11 and my consult is 12/12/12...he has already told me surgery before Christmas


marlana
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sammyjo
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PostSubject: Re: Good day    Sat Nov 17, 2012 11:03 am

i hope my surgry is befor christmas x what hospital u with x
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sammyjo
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PostSubject: Re: Good day    Sat Nov 17, 2012 11:33 am

hay so i ahve been messed about alot with dates for shunt but i DEFO have consultation on 11/12/12 but how long after that b4 i get my surgery x
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Aliviamom11
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PostSubject: Re: Good day    Sat Nov 17, 2012 7:38 pm

Sammyjo, my hospital have the records onlinee...they told me about the 2mm aneurysmon my anterior cartoid artery but not about the 3-4mm chhairi malformation..i just looked at my records at hom. Also, i have diabetes nobody told me about. All i could was grab my daughter and write to yall. My family tells me to pray but im so lost even with faith Help :afraid:


marlana
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sammyjo
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PostSubject: Re: Good day    Sat Nov 17, 2012 7:45 pm

babe you should sue i hope that u r not getting ur self too stressed coz it will raise ur pressure i am so so so so sorry for what ur going through x
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Heidi
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PostSubject: Re: Good day    Sat Nov 17, 2012 7:51 pm

Also replied to on Twitter - Try not to panic because you will make yourself have one heck of a headache. Try and relax and write down all the questions you need to ask your doctor when you speak to him. Bullet list them all thoroughly. hug
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Aliviamom11
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PostSubject: Re: Good day    Sat Nov 17, 2012 7:54 pm

Sammyjo, not stressed just find it ridiculous my neuro talked to me but the surgeon doesn't..he won't return my calls..so i got an appt to discuss this with him next week on Friday.


Heidi, i have my questions since last month and more since my er and neuro appt.


marlana
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sammyjo
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PostSubject: Re: Good day    Sat Nov 17, 2012 8:40 pm

good luck with it huni dont walk away untill u have all ur answers demand them dont let um push u around. i always leave thinking i wish i had have asked ......
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Aliviamom11
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PostSubject: Re: Good day    Sat Nov 17, 2012 9:15 pm

My mom is coming and she is way more demanding than i am..


marlana
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sammyjo
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PostSubject: Re: Good day    Sat Nov 17, 2012 9:22 pm

good its good to have a no nonesence take no prisioners supporter x
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Aliviamom11
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PostSubject: Re: Good day    Sat Nov 17, 2012 10:59 pm

It is she...we just scheduled my eye dr for the 12/3/12 so i can have everything current within a month..i am even going to my gp.


marlana
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