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 Diamox and Topamax combo - who's tried this?

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BananasMom
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PostSubject: Diamox and Topamax combo - who's tried this?   Mon Nov 26, 2012 11:09 pm

Hi guys! Very Happy My neuro is adding 25mg Topamax to my 1000mg daily dose of Diamox. Has anyone else been on these two meds together? How did it work for you? Any problems/side effects? Would love to hear other IIH 'ers experiences. Thanks!
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Relli3131
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PostSubject: Re: Diamox and Topamax combo - who's tried this?   Tue Nov 27, 2012 4:44 pm

I saw my neurologist recently because I have been quite miserable. He mentioned Topamax at this visit but then changed his mind because he did not want to decrease the 2000mg Diamox dose that I am currently on. He said they should not be prescribed together. I believe this opinion varies by neurologist.
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sammyjo
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PostSubject: Re: Diamox and Topamax combo - who's tried this?   Tue Nov 27, 2012 5:03 pm

i was onthem both for about 6 months i lost ALOT of waight coz they made my lips go fuzzy (pinns and neddles) every time i tried to eat. so just didnt eat. in the end i had to come off of them because the mixture endded up causing my epilepsy to act up quite alot. in the 6 months i was on them i did still have 3 lps but compared tyo the one evry month i usualy have that was quite good. so they do improve the ih and lower chanceds of lp but didnt take it away completly.

but just because they didnt work for me dosent mean that u should have hope that this miight be your gateway to a easier ih free life x
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Heidi
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PostSubject: Re: Diamox and Topamax combo - who's tried this?   Tue Nov 27, 2012 8:56 pm

Reply from Twitter from
Gilliana Mills‏@GillianaMills

@IHaveIIH tried it for 3 yrs. and will never do the combo again. I opted out for the VP shunt to stop the meds.
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BananasMom
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PostSubject: Re: Diamox and Topamax combo - who's tried this?   Wed Nov 28, 2012 4:45 pm

Thank you all so much everyone for your responses! I'm a little scared about making this change, but hopeful too. Smile Anyone else??
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DMajorly
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PostSubject: Re: Diamox and Topamax combo - who's tried this?   Thu Nov 29, 2012 5:27 am

I was taking the diamox and topamax combo.... neither was helpful for me unfortunately. Topomax made me drowsy. I don't take either right now. I have heard of the topomax really helping headache. Go;)od luck to ya! Let us know how goes ;)
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Saz85
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PostSubject: Re: Diamox and Topamax combo - who's tried this?   Mon Dec 03, 2012 7:31 pm

Diamox and Topomax didn't work for me.
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