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 Sammyjo update on shunt surgery

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sammyjo
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PostSubject: Sammyjo update on shunt surgery   Fri Dec 07, 2012 7:00 am

so i went to hospital (A&E) as i had double vision and very bad swooshy ears. (as u all know i have had iih for 10yrs) any way i was transfereed to queens medical 2 hours away from where i live i got told the the damage to my optic neve is perminat and i will need a permaant hearing aid AHHH but was put on emergency list for shunt surgry.


did MRI and my ventricles r still too narrow for VP shunt so LP shunt it is. the surgery list is extensive so they did LP to take some of the strain off but didn't take all of the fluid off as they have to leave some on for the surgery.

so on the 12th i go back to hospital for MRI to check on the ventricles. on the 13th i get my op weather it be VP or LP.

i am no longer affraid of the surgery when i think of the damage that has been done, losing 75% vision in one of my eyes and 80% of my hearing all and all. i just hate think how much more damage could be done so i am just thinking " weather the shunt blocks of leaks or what ever that has got to be less risk to my seances "
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Heidi
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PostSubject: Re: Sammyjo update on shunt surgery   Fri Dec 07, 2012 7:16 pm

Sammy thank you so much for the update, it's such a relief to know that you are going to be shunted before any more damage is done. Hopefully there is a chance that you may get some or all of the lost vision back with the shunt, so my fingers will be crossed for you, that that happens.
I'm glad you're not afraid of the surgery and are accepting that it is a necessary means to get you back on the right track and a decent quality of life. If you have any questions about the shunt surgery, ask away, we're only too glad to answer them.
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Sophiasmom
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PostSubject: Re: Sammyjo update on shunt surgery   Fri Dec 07, 2012 8:37 pm

thank you so much for posting Sammy, I was worried when you stopped and we didn't know what was happening. I am so sorry to hear about your vision and hearing but maybe some of that will come back after the shunt. it sounds like you are on the fast track now (whatever that means) and they will take care of you. please continue to keep us updated.
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sammyjo
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PostSubject: Re: Sammyjo update on shunt surgery   Fri Dec 07, 2012 8:49 pm

they did say the shunt may recover some of my vision but as for my hearing i may need a gromit not 100% what that is but hay ho x

I do have one question though is there anything i should have at home ready for after the surgery (when they let me out) to help the recovery or make it easier at least x
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PostSubject: Re: Sammyjo update on shunt surgery   Sat Dec 08, 2012 5:04 am

Sammy,
Happy to know you are getting the care you need...i am having a Vp surgoery..i go to the dr on December 12 to get all my questions answered so aint answers i get I'll let you know


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sammyjo
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PostSubject: Re: Sammyjo update on shunt surgery   Sat Dec 08, 2012 10:37 pm

thanks to this site i didnt really have meany questions left to ask.. but to be fair the end of my journy is going at the speed of light the last 10 years have made me feel 50 years old not 24 they have dragged. but this end bit has gone sooo fast so i havent realy had chance to ask my self much but i am embracing it not having time to dwell has been a good thing x
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sammyjo
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PostSubject: Re: Sammyjo update on shunt surgery   Sun Dec 09, 2012 3:00 am

changed my mind do have a question which coz its emergency surgery and all docs seemed panicked bout loss of sight and hearing i didnt think to ask but here its


is it just 2 insitions, one on tummy, one on spine
is it staples or stitches
how big r they

ok ok ok that was 3 questions sorry early morning curiosity x
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Aliviamom11
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PostSubject: Re: Sammyjo update on shunt surgery   Mon Dec 10, 2012 4:10 am

Ill ask i go wednesday. Put them in my journal


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sammyjo
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PostSubject: Re: Sammyjo update on shunt surgery   Tue Dec 11, 2012 12:16 am

hi guys so my mum and family want to know my christmas plans they wont me to go round to my sister for dinner to be with all the kids.as u all know my LP shunt surgery is on the 13th december will i be well enough to do the whole busy family christmas thing x
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PostSubject: Re: Sammyjo update on shunt surgery   Tue Dec 11, 2012 2:30 am

I hope so!!
I was up and about in just two days after my lp surgery. Your stitches should be out before then and all restrictions removed (but then again you guys do things a bit differently on your side of the pond ;) )
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sammyjo
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PostSubject: Re: Sammyjo update on shunt surgery   Tue Dec 11, 2012 1:41 pm

i hope i bounce back like you did.... i am getting a bit scared now as it less than 48hrs away.... i am beginning to second guess my self keep thinking "is it worth the risk of those low pressure head aches people seem to suffer with after LP shunt"

[You must be registered and logged in to see this image.] just getting slightly terrified, not of the surgery but after the surgery, gonna go on a nice walk with my beautiful dogs to calm my self.
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PostSubject: Re: Sammyjo update on shunt surgery   Wed Dec 12, 2012 6:50 pm

Just breathe!!! State of mind makes a huge difference, so try to stay relaxed and positive..just picture yourself healthy and happy with a working shunt. Focus on all the things you'll be able to do, places you'll be able to go, etc. I'll send you lots of healing thoughts!

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PostSubject: Re: Sammyjo update on shunt surgery   Sun Dec 16, 2012 4:11 pm

Sammy, how did it go????
waiting to hear. I am post op day 5 from my surgery and doing better than expected so far.
I am hoping and praying that you are well and feeling better finally.
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Deb
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PostSubject: Re: Sammyjo update on shunt surgery   Sun Dec 16, 2012 6:09 pm

so i am 3 days post op and i am happy to be one of the shunnted my tummy dose hurt ALOT i have had a little bit of head ache but nothing major x x thanks for all the support
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PostSubject: Re: Sammyjo update on shunt surgery   Mon Dec 17, 2012 1:22 am

so glad you are feeling better!!! yay!!!
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PostSubject: Re: Sammyjo update on shunt surgery   Mon Dec 17, 2012 4:03 pm

Sammy so pleased you're on the road to recovery. You take it easy and hopefully you'll be feeling great in time for Christmas!

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sammyjo
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PostSubject: Re: Sammyjo update on shunt surgery   Mon Dec 17, 2012 5:05 pm

i am honestly pleased to be the "shuntteed" my vision is almost back to what i think is normal i havent really had meany low pressure head aches. the insitions r bigger than io thought but the fact of the matter is i cant belive how good and dare i say it normal i feel,

the only down fall is the tummy pain i am full of air from op and it wont come out x x

i know its early days but i would recomend shuntting to you all i already feel more like me than i have in 10 yrs x

thank you for all your support and thank you for listening to all my venting and questions x
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medmisfit
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PostSubject: Re: Sammyjo update on shunt surgery   Tue Dec 18, 2012 3:04 pm

Sammy, I'm so glad you're feeling better!!! Just keep moving your arms and legs to release that gas pressure..I look like a crazy person after surgery because I'm flailing about, but it helps A LOT! I hope you find continued relief..

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sammyjo
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PostSubject: Re: Sammyjo update on shunt surgery   Tue Dec 18, 2012 8:47 pm

thanks for the tip. my arms and legs will b waving till i am Air-less
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PostSubject: Re: Sammyjo update on shunt surgery   Wed Dec 19, 2012 12:26 am

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Welcome to the land of the shunted, and may your good times continue forever!!
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