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 Seizures??

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blisa05
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PostSubject: Seizures??   Sat Dec 08, 2012 5:42 pm

Hi there, I have been diagnosed recently with a seizure disorder. It really sucks, and I can sorta tell now when I am about to have a seizure. My brain gets really tingly, kind of like when your foot falls asleep and the way it feels when you move it. Has anyone else developed seizures because of the IIH??
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sammyjo
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PostSubject: Re: Seizures??   Sat Dec 08, 2012 8:30 pm

i ssuffer from epilepsy so i it would be hard for me to ssy if i have but when i first got IH my epileptic fits did get worse but i did gety a few help full hits such as


*stay very hydrated (water not pop)
* yemp controll dont get over heated or allow your self to become to cold
*sleep but controlled sleep such as 6-8 hrs no more or less

i hope this helps but if not ask your doc to refer/ recomend a siezure / epilepsy specialist there are so meany tricks and hints when it comes to fits i have been epileptic for 24 yrs and i bearly notice any more even when they do accure i have learned how to bounce back quickly. this may sound strange but seizures are all about traininng your self to read the signs take care of your self and always have recovery tools on stand by x x x good luck and sorry to hear your having a hard time at the min x x
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blisa05
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PostSubject: Re: Seizures??   Sat Dec 08, 2012 9:12 pm

Thanks for all that. I am taking amitriptyline and that makes me sleep about 8 hours. you know those giant mugs with the cover and straw you get when you are in the hospital, 30 oz mug? I drink at least 3 of those a day. I gave up soda a few months ago shortly after being diagnosed, the lack of soda did improve my head pain so that was great. My doctor is sending to MINCEP in Minneapolis MN to see an epileptologist, I see them on the 21st. Right now I am taking lamictil for the seizures. I feel so tired all the time and my short term memory is terrible I feel like a moron half the time now. Is this something you experienced as well?
How long did it take for you to get to be able to bounce back fast? Afterwards my entire body and my head hurt like nothing else. My cat gives me hints too if I am going to have one, she is not normally a lap cat, but whenever I am getting close to having one Chloe will be right on my lap or in my face or something like that. The last one I had she had done this and when she was waking me up she was yowling very loud and pawing and licking my face trying to wake me. It is amazing how animals respond to these things.
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sammyjo
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PostSubject: Re: Seizures??   Sat Dec 08, 2012 9:56 pm

the memory thing is the drugs not the fits but is also a symptom of IH i am sorry to say that all anti fit meds have that after affect sorry x x

when it comes to bounceing back after y fits my experince is very diffrent i have had time to ajust u r new to it si dont out pressure on ur self, but when i was a kid when i was first aware of my fits it took me a few days to become a kid agaian cos i was just a "zombie" for a few days. now i come round from the fit down a bottle of water coz a fit instantly dehydrates. wait for my legs to come back to love sit safely on the sofa listen to music and relax into myself (almost like meditating) i learned fast that panicking after a fit puts me straight back into another do weather i come round with pee all over me or a mouth full of blood or if i have fallen on something sharp i just do the hole relaxing into myself thing be for i deal with any of it x x x breath stay calm and i promise recovery will b easier and u wont fall into another one x x


in one word MAX my border collie is a super star he knows way before me that i am gonna have a fit he gives me an hour notice he jumps up me and barks and runs around my feet continuously barking. i always know 15-20min pre fit coz i get dry mouth and smell things that are not really there and fuzzy head, but my MAX gives me that extra time x

my friends have asked me before what do u feel like after and my response is i feel like my brain has gone on holiday without me and my body did the London marathon 20 times x x
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Aliviamom11
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PostSubject: Re: Seizures??   Mon Dec 10, 2012 4:09 am

Blisa
I started having absence seizures a month ago...the dr i have linked the two..i take lamictal and klonopin...best of luck


marlana
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