HomeRegisterLog inFollow us on facebookFollow us on twitterFollow us on youtubeFollow us on LinkedinFollow us on PintrestContact usFeedback


Share  | 
 

 Getting older with IH

View previous topic View next topic Go down 
AuthorMessage
Chris15
Member
Member
avatar


PostSubject: Getting older with IH   Fri Oct 10, 2014 7:59 pm

Hi everyone, I am new to the forum but not new to IH. I have had IH for about 6 years and thought maybe it would get a little better as I got older, but that does not seem to be the case. I'm 51 and got IH after meningitis following surgery.  I'm managed on diamox ranging from 375(the good ole days) to as high as 3000mg. I'm currently on 2000mg but still having a lot of eye pain(without papilledema).  My doc does not seem concerned since he sees no papilledema on exam but I am miserable. Most days I can barely touch my eyes, and they feel best with hot compresses and a little pressure. I've always have to sleep upright(not new) and mornings are the worst(till 3-4pm, not really morning anymore).   Are there other specialized tests in the office that can be done by your neuro-opthalmologist besides field testing or do they only do other tests if you have papilledema? I've read that some docs do retinal pictures, ultrasound etc. I've only ever had a field test once a year. Also is it common for LP's to be done with fluoroscopy? Any feedback would be appreciated. Thanks!
Back to top Go down
Heidi
Admin1
Admin1
avatar


PostSubject: Re: Getting older with IH   Fri Oct 10, 2014 10:55 pm

Hi Chris and welcome to our group forums. You can still have IIH symptoms without Papilledema, here's a link to a medical article about it in our vision forum.  What you need to know about papilledema  He could photograph behind your eyes, or use ultrasound. The only other tests he could do to check your pressure would be to send you for scans, perhaps an LP or ICP monitoring to see what's going on. There are people who can have Papilledema and not have headache, so it's not always interpreted straight away as raised pressure. You could request further tests or another opinion.
Back to top Go down
http://www.ihaveiih.com
 

Getting older with IH

View previous topic View next topic Back to top 

 Similar topics

+
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
www.ihaveiih.com :: Living with IIH ::   :: Group Huddle-
Jump to:  
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Protected by Copyscape Web Copyright Protection Software
Top Disability Websites
Forumotion.com | © phpBB | Free forum support | Contact | Report an abuse | Free forum