I was just wondering if anybody has had someone else in their family diagnosed with IIH as well?
I found out recently that my second cousin now has a shunt in place to manage her IIH, after her original doctors had mistaken it for an actual brain tumor several years ago.
Now, it seems as though my mother is on the path to being diagnosed too. That is, once she can find someone in her Ruralville, USA town who knows anything about IIH. She's had miserable headaches, vision issues, etc. for years, and after a bunch of misdiagnoses, we're pretty convinced that she might have IIH as well.
It certainly makes me start to wonder about whether there is some hereditary link to the disorder!